The Latest in the Fight for the Children


Charlotte Figi

Tonight at 5:30, WRAL did an excellent report on Dravet Syndrome and the struggle to get Charlotte’s Web legalized in North Carolina. (Please read in this blog for further details, beginning on January 17th.) This report was much more thorough than the NBC 17 report, in that the reporter interviewed our neighbors here in Clayton and then traveled to Colorado to interview the Raleigh family who decided to live apart in order to get treatment for their daughter. The mother and daughter live in Colorado, but the dad has to stay here for his job. You may watch the video here. The results are amazing.

After a while, it is difficult to see why anyone would hesitate to legalize this oil that would help so many suffering children. We have been writing to our legislators and have come to understand that the time to act politically is now. Once the North Carolina legislature comes back into session in May, they will just be voting on the legislation that is being drafted and debated in committee right now. If you live in North Carolina, it is easy to find your representatives here. Just type your address into the maps for representatives or senators, and then click to open the page. Your person’s address, email, and other information will come right up. They will respond to you, since many people are writing to them on this issue at the moment, and the media is really helping. The legislators just need to know that there is widespread support for this medication among the voters.

If you live in other states, be assured that there are children there that need your help. There are over a thousand families on the waiting list for Charlotte’s Web, so you know that some of them live near you. They will all have to move to Colorado when their number comes up, so if you love them and want them to stay, you can do something about it right now. Just type and click!

1 Comment

Filed under Dravet Syndrome

One response to “The Latest in the Fight for the Children

  1. Stephen Carlin

    Thank you, Thank you, Thank you!!!!!!!!!!

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