Tag Archives: North Carolina legislature

Victory for the Children

Families at legislative buildingNothing eloquent to write tonight. Just a full heart and the wonderful feeling of gratitude that so many individuals’ hard work came to a victorious conclusion today. Governor McCrory has agreed to sign House Bill 1220, which passed this afternoon. It gives me hope that sensible people can see the truth– if they have the right people to guide them along.

If you are one of those who wrote to her senator or representative, or who talked to his friends about it, or who called a legislator on the phone, I wanted you to see this picture of just a few of the families that you helped. Even if you just patiently listened to me blather on these past few months, thank you for being kind. And if you prayed, let’s all thank the Lord tonight– and tomorrow and tomorrow and tomorrow.

God bless you.

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Filed under Christian Life, Dravet Syndrome, Life's Travails- Big and Small

They Didn’t Want to Do It

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Rep. Pat McElraft

Rep. Mark Hollo, the chairman of the NC House Committee on Health and Human Services, canceled the meeting last night in which the Hope 4 Haley bill would have been considered.  Rep. Hollo had repeatedly refused to meet with families of children with intractable epilepsy, even when they showed up in his office. Needless to say, the parents of these suffering children were extremely discouraged last night, and could not be comforted by assurances that the bill would be taken up in the long session next year. Every day is precious for a child with constant seizures.

Unexpectedly, the bill (House Bill 1220) was added to tonight’s committee meeting, and our neighbor, Steve Carlin, was in time to speak to the legislators. By the time he was finished, there wasn’t a dry eye in the room, and the bill passed unanimously! What a turnaround in twenty-four hours!

Rep. Pat McElraft, the sponsor of the bill, expects that it will pass a committee meeting tomorrow morning, since many of the bill’s co-sponsors are on the committee, and then will make it to the full House by tomorrow afternoon. If all goes smoothly, it should reach the NC Senate by next week. Many thanks to Representative McElraft for her tireless work for these families.

Here’s the rub: The Senate does not want to hear the bill. They are still not educated about cannabidiol and believe that the bill is too controversial. It is an election year, and I suppose winning elections is more important to some of them than saving children’s lives. It is up to us to show them that the people of North Carolina have better values than that. Please find out how to contact your state senator here and let him or her hear from you by Monday. Think how many lives could be saved by just a phone call or an email!

Pray, pray, and then pray some more.

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Filed under Dravet Syndrome